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Learn more- Imagine being a perfectly normal, healthy child and then one day, everything changes. The life you once knew abruptly leaves you staring death, straight into the eyes. Being told chances are you will not see tomorrow.
This is where Louis Chaix's story starts.
Louis Chaix is a 26 year old born in Paris, France who stared death into the eyes more than once. At the age of 6 he suffered from Toxic Epidermal Necrolysis where 80% of his body was burning from the inside out.
As the unknown took a toll on his family it is his love for hockey that pulls him through! Even at his young age he knew there was still something substantial that he was meant to do in the world and it was not his time to go.
Louis battled a rare sickness, with a society leaving him with every reason to throw in the towel. All odds were stacking up against him, yet failed at collapsing him. He found hope, strength, and a purpose to fight. A six year old little boy ,with a love for hockey, against all odds, survives.
A student visa to study in the United States has allowed his dream of playing hockey in the U.S. to become a reality. While facing setbacks, challenges, unfamiliar customs in a foreign country, being away from his family tries to crash his momentum, he knows he must once again find his mental strength and purpose.
The drive Louis illuminates gives him the ability to push through. Still, the fierce reality is he realizes he struggles to find a way to internalize his guilt of actually surviving a rare life threatening disease. He feels guilty to be actually living his dream while so many continue to suffer from the horrible disease that he overcame. Weighing heavy on his mind his empowering spirit won't let setbacks detour him from a fulfilling life.
Louis knows he was given a second chance at life and now is determined to make it count,he respects, appreciates, and makes a conscious effort to never take a single day for granted. He must find a way to give back. Louis is a survivor who literally turns adversity into positivity, one stride at a time.
Educating, bringing awareness and raising funds for the disease that tried to take his life,Toxic Epindermal Necrolysis. From inspiring people with rare diseases, to people who are lost, seeking a purpose, and even to the weary seeking fresh inspiration. Louis has made a difference. Knowing that tomorrow is not promised. Louis plans to leave his mark while soaking up the history and beauty across America.
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